July 1st was supposed to be Caleb's last day of chemo. Remember, Caleb is the little boy from Richland and White Bluffs Elementary, that was diagnosed just a few days after school began last year. Sarah and I had been counting down the days till they would be able to come home for good, me telling her things I couldn't wait for her to witness him do once the chemo left his body. In the year that they had been doing cancer care, they were only able to come home once. Since Caden had been doing the chemo schedule that Caleb was doing (first line defense for his cancer: Rhabdomyosarcoma) I knew how much they had suffered...sort of. Caden did it for six weeks and it was the
hardest, most hellish six weeks we had ever endured. Caleb has been doing it for
one year! So, two days before they were scheduled to come home, I felt a bit blindsided by their news-- they found a new tumor in his jaw that had grown during and despite chemo. They were not done. Now, they don't know when they
will be. It was like a sucker punch to the gut-- and he isn't even my child!
Immediately I started to look at my own life, feeling quite bad about things that were bothering me in my life. At the time, we were in-between houses. Suddenly the fact that it felt stressful that we were sleeping on mattresses in the front room seemed petty. Why should I care when we were warm, safe, and free from cancer care in our own home-- things could be worse. The new flowers on my new front porch almost made me feel sick-- who cares which way the flowers cascade down the side of the pot? At least your healthy son gets to go whitewater rafting with his friends! I started to feel ridiculous about things that were "plaguing" me. It made me look at things differently.
I have been keeping close tabs on their cancer care. I make sure to send out little texts on the days that he has treatments. I also make sure to let her know that I am thinking about them when I know it has been a few days. I just want her to know that I am here. Today, she thanked me for being her friend, even when she doesn't get back to me in a timely manner. She explained that she is really struggling with "Cancer Envy." For so long, they were told that they would be finished with their trial and hardships in August 2016. So when that day came and they got even worse news than they could have ever imagined (as if hearing your child has cancer isn't bad enough the first time), she felt anger to those that she knew that were done. I told her that I understood, but not in the way that she did.
You see, I have felt just the opposite. I can understand why she would be jealous of our lives. This summer has been one of the best of our lives. Having been faced with the reality that death could take our child at any time (sometimes it feels like Caden is being stalked by it), has made us appreciate so much in our lives. So, when she would ask how we were doing, after giving me a LONG text about how hard things were for them, I felt what I can only describe as "Survivor's Guilt." I almost didn't want to be honest about how great things were going for us. Forget that Caden has been dealing with cancer for 2.5 years, or that we have had it told to us twice now that his cancer has returned, I felt guilty that my son was having a normal childhood, and hers was not. Seeing the life that we have lived for the past three months, it's easy to see why she would feel jealous of us. Our summer has felt like an amazing dream, the most beautiful gift, a miracle. Someone that was sitting in Seattle, not knowing when their own child would be done suffering, would
definitely look at our situation in life (no matter the fact that we are not truly done with cancer care, that bad news could come to us in September that would plunge us right back into the world that she is still living) and
wish for even just one day of the life we live.
Just as it is a struggle for her not to feel jealous of us, it is a struggle for me not to feel guilt. I don't wish for cancer care to begin again-
no way- but it is truly hard to tell her the truth when she asks.
The emotions that come because of cancer are hard, no matter where you are on the path. It is hard to understand for those that haven't been through it, and hard for those that have to explain it. It's hard for those that are going through it, and hard for those that have been there. It makes you jealous for those that get to live their lives outside of the hospital, yet makes you appreciate life more fully when you leave the hospital. I can honestly say that I have been grateful for cancer, yet that makes me feel confused, too. It's easier to be grateful for it when life isn't made difficult by it. It's also confusing that we have both said we wished our child had Leukemia. I mean, who wishes that their child had been diagnosed with a different form of cancer, one that still steals lives, but just not as many as the cancers our sons are dealing with?
Cancer is confusing.
Cancer sucks.